Social Media Users Willing To Share Health Data Despite Concerns About Privacy

...Freeman-Daily's response to sharing medical information online reflects the attitude many people with rare and complex diseases seem to have according to the findings of a recent report by the Institute of Medicine.

The report, titled "Social Networking Sites and the Continuously Learning Health System: A Survey," is the discussion of two online surveys -- one conducted by a research arm of the Consumer Reports National Testing and Research Center and the other by PatientsLikeMe, a for-profit social networking site that shares data, offers peer support and facilitates transparent research.

It found that 94% of social media users with medical conditions said they would be willing to share data about their health to help doctors improve care. The same percentage -- 94% -- said they would do so to help other patients like them.

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Article originally published on ihealthbeat.org